I've put together a few useful links about blended diet for tube fed children. I'm happy to add other useful ones if you want to contact me.
My best source of information is facebook https://www.facebook.com/ and I am a member of Blended Diet UK which is a wonderful resource. There are plenty of people on there who have been doing BD for some time and have a huge amount of information and are always willing to share and support. There are plenty of new people too who are starting out on the BD road. There is also a facebook page for oral eaters but the recipes are very healthy and could easily be blended and tube fed. Also a lot of nutritional information. https://www.facebook.com/search/top/?q=cerebral%20palsy%20nutrition%20and%20meals
There is a brilliant website called 'Food for Tubies' Lots of interesting answers to general blending for tubies questions.
This is a super book and everyone should get it. Lots of practical advice for starting blending for tubies.
I would recommend everyone get this book as its the most easily accessible for non professionals.
Information of tube feeding generally and tube care
This is a lovely site called Feeding Tube Awareness Foundation which is American but the general information about feeding tubes is very detailed and informative. It mentions blending food for tubes but concentrates mostly on the tubes themselves and how to manage children with tubes.
http://www.feedingtubeawareness.org/tube-feeding-basics/introductions/new-to-tube-feeding/ You can click on the PDF download link there which is of most interest to us or click on this link
To obtain Calorie breakdowns and vitamin and mineral breakdowns of the food you are blending there are plenty of apps and sites like
My Fitness Pal and SparkRecipes http://www.nutritiondata.com and loads more. With these you just put in your ingredients and their weights and they will calculate all the above. Most people start off with frantic calorie counting and stressing over the 'perfect' blend, but in the end most people just know what suits their child, what their favourite calorie booster are, and recognise that over the course of the day the majority of the essential nutrients will find their way into your child!
Some diets are very specialised, such as the keto diet and exclusion diets for children who have various allergies or intolerances. These can be done with BD of course, as they would be done with an orally eating child, but because the child's health is dependent on getting it right I recommend getting the dietician on board. They should support you in your choice and work towards a safe outcome.
How you feed your child depends on many things. If they have a completely unsafe swallow it may be practical to make up a 'complete' blend and give boluses of this over the course of the day, refrigerating the remainder. They can have 'meals' with everyone, only theirs is blended and given via the tube with tasters if safe. It is recommended that children sit with their families round the table for meals and join in and be part of the meal time interaction. They can have food made up in batches and frozen. I prefer to make a batch of breakfasts (oats, honey, almonds, blueberries, bananas), sandwiches for lunch (wholemeal bread, cream cheese, butter, celery, apple, walnuts, cucumber, tomato, red pepper and mayo) and a snack (greek yogurt, berry fruits, cream, bananas, sweet brioche) and dinner (chicken Korma curry with lots of vegetables and coriander naan bread). I try to make my blends taste nice and offer tasters. The Food for Tubies site linked above has some good starter recipes.
Writing a Protocol NHS trusts will need to write a protocol for their employees to follow for giving food via a feeding tube. It should be based on the BDAs Tool Kit for feeding BD via a tube. Leicestershire Partnership have written one which could be copied by other trusts who may be finding it difficult to do in isolation.
A great website for parents of children who have specifically had brain injuries is Brainstars. http://brainstars.co.uk/ It also has a great section on blended diet. Also there is an interview with a dietician called Laura Schoenfield who is very much in favour of BD and is quite openly saying not all children tolerate formula. http://brainstars.co.uk/interview
Use of blended / liquidised ‘table food’ diets via gastrostomy:
Questions and Answers
Some informative answers to questions that may occur from multiple sources and brought together by the charity Together for Short Lives. A must read document.
I'd just like to say a special 'thank you' to Sharon V, without whom our BD journey would have been much longer
Nothing contained in this site is or should be considered, or used as a substitute for, medical advice, diagnosis or treatment except purely for the purpose of using Blended Food for tube fed children in the way I have described. I cannot accept any legal or personal liability for the outcomes of actions taken by anyone using this information in an unintended way. This site and its information contains freely available information from appropriate sources. I am not affiliated to any organisation or official body. I receive no payment for this information and do not ask for any.